Newsflash, it's 2015! Like most parents, as soon as "hirschprung" was said, Alyssa and Jake typed it into google and clicked and read everything they could find.
Some of it was inspiring. Some of it was confusing. A lot of it was scary.
Children had died. Children had ostomies for life. There was SO. MUCH. POOP.But what resources are easy to understand? And which can be trusted?
Alyssa and Jake found the Mayo Clinic's website to be very helpful. It was a name they knew and trusted. The information was easy to understand and the graphics were helpful without being too... graphic.
They also found many, many, many blogs detailing people's personal experiences or their experience as parents. But many of them were outdated or anecdotal. However, they found one blog following a child from diagnosis through early childhood (and ongoing...) called Roo's Journey that they thought was really well done.
Alyssa & Jake found a lot of information-- good, bad & in between. But most importantly, they found hope.
Mayo clinic HD page: http://www.mayoclinic.org/diseases-conditions/hirschsprungs-disease/basics/definition/con-20027602
Roo's Journey: https://roosjourney.wordpress.com/
info overload image: http://www.danadorsi.com/wp-content/uploads/2015/01/information-overload.jpeg
mayo clinic image: https://pbs.twimg.com/profile_images/489129767891783680/QKA-tOnf.jpeg
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